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Patient support groups

There are a number of patient support groups which enable you to meet, share and get advice to help you cope with your condition or that of a loved one. These groups are organised by the appropriate medical teams with patient assistance where available. The Royal Free Charity provides grants to enable these groups to be set up initially for the patient’s benefit.

Neuroendocrine Tumour Support Group (NET)

The Royal Free NET department patient and carers support group's aim is to enable patients living with this rare cancer and their carers to share experiences. The group is led by one of the Clinical Nurse Specialists in the team. Each meeting has a specific topic, chosen by the group, with a key note speaker and provides a social and informative evening. The group support research opportunities and fundraising to help identify earlier diagnosis and advanced treatments.

To find out more contact jorge.garcia-hernandez@nhs.net

View videos of previous support group talks.

If you would like to attend future NET support group meetings please let us know.
 

Liver Patients' Support Group (LPSG)

The Royal Free Charity Liver Patients’ Support Group (LPSG) represents the interests of patients with liver disease who are managed by the Royal Free London NHSFT. Its purpose is to support, inform and represent patients with liver disease. The group also raises funds for research into liver disease and to improve the patient experience e.g. inpatient massage service and additional equipment, such as an ice machine and mobile ultrasound machine.

To find out more visit liversupportgroup

Gallstone Group

The Gallstone Group brings patients, carers and clinicians together to identify, and prioritise for research, the most important treatment uncertainties in non-alcohol related liver and gallbladder disorders. This will result in better research and better outcomes for patients with gallstones.

To find out more contact kurinchi.gurusamy@nhs.net or call 020 7794 0500 ext 33943
 

Acute Foot Group

Acute Foot Group meetings focus on patients’ day-to-day experiences of different types of treatment, discussing current research in diabetic foot and fundraising for the patient group. Meetings will be facilitated by members of the multidisciplinary acute foot team. Funds are available for transport to this event.

To find out more contact richardleigh1@nhs.net
 

Primary Immunodeficiency Support Group (PID)

The Primary Immunodeficiency (PID) support group represents the interests of patients with Primary Immunodeficiency who are managed by the UCL Centre for adult PID at the Royal Free Hospital London.

To find out more visit pidpatients.org

ICDC support group

This group supports all patients of the Ian Charleson Day Centre in a social environment. Meetings are quarterly and the presenter talk topic comes from suggestions from the group.